Know the Signs
When your body doesn't add up,
insist on answers.
Every symptom below usually has an ordinary cause. That's exactly what makes brain tumors so easy to miss. What matters is the pattern: symptoms that are new, that keep getting worse, or that show up together.
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1. Headaches that change
New headaches, or old ones that change character: more frequent, more severe, worse in the morning or when coughing, bending, or straining, and not helped by the usual over-the-counter medicine.
✦ Alicia's headaches arrived in her last two weeks.
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2. Dizziness & balance problems
Feeling off balance or unsteady, veering when you walk, bumping into door frames and walls, or a sense of vertigo, especially when it keeps returning or worsens over weeks.
✦ Alicia's first and longest symptom: light at first, worsening over eight weeks.
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3. Vision changes
Double vision, blurred vision, or losing part of your field of view. It can come and go, which makes it dangerously easy to dismiss as tired eyes or an outdated prescription.
✦ Alicia saw double in her final days.
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4. Nausea or vomiting
Ongoing queasiness or vomiting without a stomach explanation, particularly in the morning, or arriving alongside headaches or dizziness.
✦ For Alicia, this arrived in the final days.
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5. Clumsiness & weakness
Trouble grabbing or holding onto things, dropping objects, weakness or numbness in an arm or leg, or losing coordination in movements that used to be automatic.
✦ Alicia struggled to grab and hold things in her final days.
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6. A first-ever seizure
Seizures aren't always dramatic: staring spells, sudden tingling or numbness, strange smells or sensations, brief unresponsive moments. Any first seizure in an adult needs urgent evaluation.
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7. Speech trouble
Struggling to find words, slurring, or saying words that come out wrong, noticed by you or, often first, by the people around you.
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8. Memory, focus & fatigue
New confusion in everyday matters, trouble concentrating or following simple things, unusual drowsiness, or feeling profoundly tired for no reason.
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9. Personality or mood shifts
Acting unlike yourself: sudden depression or anxiety, irritability, withdrawal, or uninhibited behavior. Loved ones often spot this one before the person does.
The pattern rule: one symptom for a few days is usually nothing. Multiple symptoms from this list, sticking around or getting worse over weeks: that's a pattern. Patterns deserve imaging, not guesses. So does a single symptom that keeps gradually getting worse over weeks. Only an MRI or CT scan can confirm or rule out a brain tumor.
Go to the ER or call 911 now if you have:
- A sudden, severe, “worst of your life” headache
- A first-ever seizure
- Sudden weakness or numbness, especially on one side
- Sudden trouble speaking, seeing, or walking
- A worsening headache with repeated vomiting or confusion
- Becoming increasingly drowsy or hard to wake
Alicia's Pattern
Eight weeks of warnings. Zero scans until day 57.
For eight weeks, Alicia had one symptom: dizziness, so light at first it was easy to explain away, gradually getting worse. In her last two weeks the rest arrived: headaches, then double vision, nausea, and trouble grabbing things in her final days. Everyone, including Alicia herself, believed it was anything but a brain tumor. By the time anyone looked, two tumors had already taken hold.
One earlier scan could have changed everything. That's the entire reason this foundation exists.
Advocate for Yourself
How to ask for a scan, in exact words
It can feel awkward to push back in an exam room. Don't let that stop you. Borrow these words:
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I've had these symptoms for [how long], and they're getting worse. Could this be neurological?
Opens the right door. “Neurological” is the word that changes the conversation. -
What would it take to rule out something serious, like a brain tumor?
Direct, reasonable, and hard to wave away. Ruling out is what imaging is for. -
I'd like a referral for brain imaging or to a neurologist. If you don't feel it's necessary, would you note that in my chart?
A respectful ask with accountability. Documentation requests are taken seriously. -
That diagnosis might explain one of my symptoms, but what explains all of them together?
The pattern question. Vertigo explains dizziness; it doesn't explain dizziness plus double vision plus dropping things.
Keep a symptom diary. Dates, what happened, how bad, how long. A written pattern is much harder to dismiss than a vague “I've been dizzy lately.”
Bring a witness. A partner or friend who has watched the changes can say what you can't: “This is not normal for her.”
A second opinion is your right. If symptoms keep worsening and you're not being heard, see another clinician, or go to the ER if it's escalating.
To healthcare providers: when a patient presents with multiple progressive neurological symptoms, please scan early. Dizziness plus vision changes plus incoordination is not a “watch and wait” picture. One image settles what no amount of reassurance can.
Symptom information adapted from the Mayo Clinic, MD Anderson Cancer Center, and the National Brain Tumor Society. This page is educational and is not medical advice; symptoms on this list are usually caused by conditions other than a brain tumor. When in doubt, talk to a licensed clinician.
Know someone with symptoms that don't add up?
Send them this page. It's the conversation Alicia never got to have.